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23andMe Privacy Ombudsman Urges User Consent Pre-Data Sale

Posted on June 13, 2025June 14, 2025 by Dissent

Neil Richards is a highly respected privacy law scholar, and this week, his careful approach to privacy was on full display.

Cassandre Coyer reports:

The consumer privacy ombudsman tasked with analyzing the impact of 23andMe’s bankruptcy sale on individuals’ privacy has called for users’ consent before the sale of the company’s vast trove of genetic data receives court approval.

Neil M. Richards told the bankruptcy judge that he couldn’t “conclude with certainty” that the sale of millions of customers’ genetic data is consistent with 23andMe’s privacy policy and statements. He recommended that the company obtain “separate, affirmative consent” before selling user data to either Regeneron Pharmaceuticals Inc. or TTAM Research Institute, according to his report filed Wednesday in the US Bankruptcy Court for the Eastern District of Missouri.

Read more at Bloomberg Law.

h/t, Joe Cadillic

Related: States sue to block the sale of genetic data collected by DNA testing company 23andMe

Related posts:

  • To Delete or Not to Delete: Can 23andMe Really Sell Genetic Data Via Bankruptcy?
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