Jennifer S. Geetter and Chelsea M. Rutherford of McDermott Will & Emery write: Six months after the Precision Medicine Initiative’s (Initiative’s) debut, the White House has released a working draft of proposed privacy and trust principles (the Principles) to govern future design and development efforts for the national research cohort envisioned by the Initiative. This cohort will be a…
Category: Healthcare
KR: [Editorial] Patient records leak
From an editorial in today’s Korea Herald: Medical information on nearly 90 percent of Korean population was sold as big data to a multination firm, raising concerns about safekeeping of the highly confidential information. A company specializing in developing medical fees settlement programs used by hospitals and the Korea Pharmaceutical Information Center — which distributed free…
UK: GPs can refuse insurers’ requests for patient records, commissioner’s office rules
Alex Matthews-King reports: Insurance companies requesting GPs release their patient’s entire medical record under the Data Protection Act are abusing fundamental rights enshrined in EU law, the Information Commissioner’s Office has ruled. GPs are no longer obliged to comply with requests from insurers even when a patient has given consent and could even be in…
NHS denies personal information will be shared in appointments row
Stuart Sumner reports: A letter from NHS England to EMIS Health, a firm that supplies software to GP surgeries, reveals plans to extract data around millions of patients’ GP appointments within the next couple of months. Whilst some media outlets have claimed that the data will include personally identifiable information – which has provoked an outcry among…