Crystal Grant writes: Nearly every baby born in the U.S. has blood drawn in the immediate hours after their birth, allowing the baby to be tested for a panel of potentially life-threatening inherited disorders. This is a vital public health program, enabling early treatment of newborns with genetic disorders; for them, it can be the…
Category: U.S.
After Huge Illuminate Data Breach, Ed Tech’s ‘Student Privacy Pledge’ Under Fire
Mark Keierleber writes: A few months after education leaders at America’s largest school district announced that a technology vendor had exposed sensitive student information in a massive data breach, the company at fault — Illuminate Education — was recognized with the software industry’s equivalent of the Oscars. Since that disclosure in New York City schools, the scope of…
Public comment period closing soon on West Virginia’s submission manual for All-Payer-Claims Database
PogoWasRight.org received a request from the reader named below to share a call for action in West Virginia concerning the state’s All-Payer-Claims Database: Listen up folks, this is IMPORTANT and yes, there is something YOU CAN DO to help prevent YOUR PRIVATE HEALTH INFORMATION from getting into the hands of a ALL POWERFUL government database….
A Faustian Bargain: Is Preemption Too High a Price for a Federal Privacy Law?
Privacy law scholar and professor Daniel Solove offers some thoughts on the proposed federal privacy law, the American Data Privacy and Protection Act (ADPPA) … The ADPPA bill itself isn’t too bad. In my view, Congress is generally a D student when writing laws, and the ADPPA is a B+. The ADPPA has a lot…