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DNA database highlights need for new medical privacy protections

Posted on October 14, 2016 by pogowasright.org

David Lazarus reports:

Relatively little attention was paid last year when President Obama called for creation of a database containing the DNA of a million volunteers as part of moves toward “precision medicine,” or tailoring healthcare to people’s individual needs.

[…]

“Big data and precision medicine might be good for society, but it could harm individuals,” said Dr. Joseph Fins, head of the Division of Medical Ethics at Weill Cornell Medical College. “We have to find a balance.”

What happens, for example, when your insurer determines that out you’re predisposed for a chronic disease? Does your employer have a right to such information? What are the individual’s responsibilities once he or she is informed of a potential illness?

Read more on Los Angeles Times.

Category: Healthcare

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3 thoughts on “DNA database highlights need for new medical privacy protections”

  1. joe says:
    October 14, 2016 at 9:14 am

    Google, the NSA & DHS are creating a global DNA database:

    http://massprivatei.blogspot.com/2015/10/google-nsa-dhs-are-creating-global-dna.html#!/2015/10/google-nsa-dhs-are-creating-global-dna.html

    1. Dissent says:
      October 14, 2016 at 9:34 am

      Yeah, I’ve been concerned about this for a number of years now. While I appreciate some of the potential in terms of research on genetic disorders and developing treatments, the potential for misuse is just so huge.

  2. Adrin says:
    October 18, 2016 at 12:49 pm

    Kind of has the ring of Gattaca from 1997 doesn’t it.

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