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Genetic Testing Company Wants To End ‘Data Hoarding’, Spends $20 Million To Put 10,000 Genomes In The Public Domain

Posted on March 23, 2016June 26, 2025 by Dissent

Glyn Moody reports:

Recently, we wrote about how Sage Bionetworks was sharing data it collected during a clinical study. That was a laudable move, but made much easier by the non-profit nature of the research organization involved. Here’s a sign that openness is spreading even to commercial research, as reported by The New York Times:

In an unusual move, a leading genetic testing company is putting genetic information from the people it has tested into the public domain, a move the company says could make a large trove of data available to researchers looking for genes linked to various diseases.

Read more on TechDirt.

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