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Privacy concerns swirl around HHS plan to build Medicare, Medicaid database on autism

Posted on May 7, 2025May 7, 2025 by Dissent

Sarah Owermohle reports:

The US Department of Health and Human Services on Wednesday unveiled a pilot program for the National Institutes of Health to tap into Medicare and Medicaid data in its search for the root causes of autism.

The database — which HHS said will draw from insurance claims, medical records and data from wearable technology such as smartwatches — is one of the first steps in HHS Secretary Robert F. Kennedy Jr.’s bid to find the causes of autism “by September.”

Early signals from health officials that they would build a database to track autism were met with swift rebuke from advocacy organizations and doctors.

Read more at CNN.

h/t, Joe Cadillic

Category: GovtHealthcare

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