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Privacy Tip #364 – Montana Enacts Genetic Information Privacy Law

Posted on June 19, 2023June 24, 2025 by Dissent

Linn Freedman of Robinson+Cole writes:

Montana Governor Greg Gianforte has signed SB 351, the Genetic Information Privacy Act (GINA), which “requires an entity to provide consumer information regarding the collection, use, and disclosure of genetic data; providing for limitations and exclusions; providing for enforcement authority; and providing definitions.”

GINA requires entities that collect genetic data, defined as:

any data, regardless of format, concerning a consumer’s genetic characteristics, which includes but is not limited to:

(i) raw sequence data that result from sequencing all or a portion of a consumer’s extracted DNA;

(ii) genotypic and phenotypic information obtained from analyzing a consumer’s raw sequence data; and

(iii) self-reported health information regarding a consumer’s health conditions that the consumer provides to an entity that the entity:

      (A) uses for scientific research or product development; and

      (B) analyzes in connection with the consumer’s raw sequence data.

Read more at Data Privacy & Cybersecurity Insider.

Related posts:

  • Montana’s New Genetic Privacy Law Caps Off Ten Years of Innovative State Privacy Protections
Category: LawsU.S.

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