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Tag: genetics

Navigating Privacy Gaps and New Legal Requirements for Companies Processing Genetic Data

Posted on August 11, 2025 by Dissent

Tori Downey, Thora Johnson, Alyssa Wolfington, and Shannon Yavorsky of Orrick, Herrington & Sutcliffe write: Interest in genetic data is on the rise, driven by the growth of direct-to-consumer (DTC) genetic testing and its value for AI in drug development and personalized medicine. Historically, gaps in privacy laws have sometimes left sensitive health information unprotected…

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DNA Testing Provider Sued Over Genetic Data Sent to Meta, Google

Posted on December 16, 2024 by Dissent

Cassandre Coyer reports: Genetic testing company Gene by Gene Ltd. was hit with a proposed class action accusing it of sharing the DNA testing results of more than 10,000 customers with Alphabet Inc. and Meta Platforms Inc. without their knowledge or consent. Gene by Gene, which conducts business as FamilyTreeDNA, deployed tracking tools—often called pixels—on its website to share…

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